perjantai 14. joulukuuta 2012


Hello, dear readers!

Yesterday I came home from a month long stay in hospital. I was paralyzed from the waist down, had to have nurses bring me a potty to shit into while laying helplessly in my bed and so on. Quite the humbling experience, as I am sure you can imagine.
Legs came back to me, to my great, big relief and I now walk better and more normal than I did say six weeks ago. They never found any physical reason for my getting paralyzed, but it became horribly clear how badly a certain way too over-marketed neural pain killer called Lyrica affected me. My symptoms matched those of MS disease, basically. I got examined as thoroughly as possible and I am forever thankful for that and as they lowered my dose of Lyrica (that was originally prescribed to me to help control neural pain that was caused by a damage to a nerve while having a surgery performed to my badly broken ankle back in January 2011), the mysterious and horrible symptoms started to disappear.
These symptoms / side-effects included and were not limited to:
-problems urinating
-central neural system going to a state of an overload
-involuntary shaking
-sensations of numbness and tingling in my limbs
-difficulties walking smoothly, “normally”, movements getting “robotic”
et cetera. I have now also gotten an official diagnosis of Ehlers-Danlos syndrome (hypermobility type) and this has helped me tremendously with understanding why my body has been over-sensitive, ill and achy all my life. I now finally know the cause for all my intensive chronic pain and enjoy having the diagnosis so that I get finally taken seriously by doctors and nurses when in pain. No more shrugging, no more telling me it’s just all in my head. Such a great big number of all sorts of problems with my body are now understood and what’s best is that I myself can now begin to understand my physical condition and begin to learn to be a bit more respectful and understanding towards my limitations in life.

I hope to return to my usual posting schedule little by little and even start doing outfit posts again. But it will take some time, as I'm positive you, dear readers, can understand. Also the nature of my writings will change into a bit of a more personal direction perhaps, due to the changes my identity is going through etc.

That's all for now. Toodles!

1 kommentti:

  1. I'm happy you are no longer sleeping in the hospital. Hopefully many good things will come for you now as you will be able to take better care with new treatments. Best Wishes!